quinta-feira, 8 de fevereiro de 2018

Dia 1 e Dia 2- Patient-Centered Care Network for MRKH

Dia 1 e Dia 2:

Hi Everyone!

Thank you for accepting to be a part of this email chain to try to spread MRKH research around the world. We will be emailing content to be posted to all MRKH support pages frequently throughout February. These posts will lead up to a survey which we will launch on March 1st.  The survey will gather information on what YOU want to see in future research regarding MRKH. Please share the posts from these emails to your group to help us spread the word to your members. 


For the first time in history, your MRKH experiences and answers helped impact how MRKH is diagnosed and treated around the world. The survey that you took in 2017 resulted in 1337 responses and was presented to leaders in the gynecological field at the North American Society for Pediatric and Adolescent Gynecology.  Throughout the next few weeks we will post testimonials from physicals, patients and parents that attended the conference: 


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