is the big launch day of our second survey and we are super excited to show you what we have been up to with our AWESOME survey to improve mental health and quality of life for women with MRKH! Who is ready to use their voice to make a positive impact and create change for the MRKH community?
The Global MRKH Consortium Team proudly presents the 2018 survey! Last year we took your 1,337 survey responses, scrolled through thousands of comments and developed your stories into a 37-page analysis report. We shared your responses with a global network of Health Care professionals at the North American Society for Pediatric and Adolescent Gynecology, and we’re ready to do it again because your story matters!
Below is the link to the survey where you can help us understand a few of the following things;
Mental health and quality of life in women with MRKH
The role of peer support for women with MRKH
Develop accessible resources to improve diagnosis and ongoing care for women with MRKH
Experiences of vaginal lengthening treatment in women with MRKH
The relationship between parent and patient adjustment in women with MRKH
We didn’t want to be alone. We don’t want to do it alone. This is our movement and this is why we are so pleased we found you.
Link to survey for patient and parent completion: