Today is the big launch day of our second survey and we are super
excited to show you what we have been up to with our AWESOME survey to improve
mental health and quality of life for women with MRKH! Who is ready to use
their voice to make a positive impact and create change for the MRKH community?
The Global MRKH Consortium Team proudly
presents the 2018 survey! Last year we took your 1,337 survey responses,
scrolled through thousands of comments and developed your stories into a
37-page analysis report. We shared your responses with a global network of
Health Care professionals at the North American Society for Pediatric and
Adolescent Gynecology, and we’re ready to do it again because your story
matters!
Below is the link to the survey where you can
help us understand a few of the following things;
Mental health and quality of life in women with
MRKH
The role of peer support for women with MRKH
Develop accessible resources to improve
diagnosis and ongoing care for women with MRKH
Experiences of vaginal lengthening treatment in
women with MRKH
The relationship between parent and patient
adjustment in women with MRKH
We didn’t want
to be alone. We don’t want to do it alone. This is our movement and this is why
we are so pleased we found you.
Link
to survey for patient and parent completion:
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